I have managed to collect a variety of poetry written by those suffering with ME/CFS as well as other Chronic Illnesses from all over the world.

M.E and Me

By Ainslie Eccleston

I have a disease that nobody sees,

I cry to the heavens and fall to my knees,

I’ve tried and tried a thousand times,

To crack the code, to find reason and rhyme,

Years go by and I learn to adapt,

Have glimpses of light and a life in the gap,

Between health and hell, suffering and pain,

For ten years now, life has not been the same,

The hardest part, strangely enough,

Is not the constant exhaustion, though that part is tough,

Not the brain fog, confusion, the aching and pain,

Nor the fact I can no longer run in the rain,

Not the fact that I’ve been out of work for years,

Or the loss of friendships that can bring me to tears,

Not the dreams I once had, and how much I try,

To recover my health as months and years go by,

The hardest part, believe it or not,

Is the sense that no one quite gets M.E, believes M.E, or understands M.E,

Not even me!