Patience- A Chronic Illness Poetry Collection

I have managed to collect a variety of poetry written by those suffering with ME/CFS as well as other Chronic Illnesses from all over the world.

This one is extra special as the artist has turned is poem into the most beautiful and moving song, I have literally listened to this over and over again, it is honest and realistic rendition of how many of us feel

 

Patience

by Ren Gill
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M.E and Me – A Chronic Illness Poetry Collection

I have managed to collect a variety of poetry written by those suffering with ME/CFS as well as other Chronic Illnesses from all over the world.

M.E and Me

By Ainslie Eccleston

I have a disease that nobody sees,

I cry to the heavens and fall to my knees,

I’ve tried and tried a thousand times,

To crack the code, to find reason and rhyme,

Years go by and I learn to adapt, Continue reading

Invisible Illness will not break ME-A Chronic Illness Poetry Collection

I have managed to collect a variety of poetry written by those suffering with ME/CFS as well as other Chronic Illnesses from all over the world.

Invisible Illness will not break ME

By Ainslie Eccleston and Lachlan Conway

I have a disease that nobody sees
I cry to the heavens and fall to my knees
I’ve tried and tried a thousand times
To crack the code, to find reason and rhyme
Years go by and I learnt to adapt Continue reading

CFS Comic Strip- CFS/ ME Awareness Week 2015

One of my spoonie friends wrote about her CFS/ME journey as a comic strip and I absolutely love it, it talks about her journey from the very beginning to right now, she is by no means recovered but her functionality has improved and continues to do so as time goes on.

CFS Comic 1 Continue reading

CFS/ME Awareness Week 2015 Creativity

Many of us with these illnesses and many other chronic conditions find comfort and release in being creative for me its origami and finger painting.

I find a sense of peace comes from doing origami and finger painting is well really dam fun that type of primal child type fun!

Others who are more talented create pieces about their illness in the forms of pictures, abstracts and even toy making like below.

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The Corrupted – A collection describing the different stages experienced with CFS (Part 2) – CFS/ME Awareness Week 2015

Averyl Ritchie is a wonderful artists I met in a CFS/ME group.

Her Corrupted Collection goes through the different stages of how she has experienced CFS/ME and it is a very beautiful depiction of what I think many of us have gone through.

Obscured Corruption

Obscured Corruption

This is how Averyl describes losing her cognitive skills – which is probably the worst part of CFS. Her brain is foggy, can’t think clearly or retain information. You forget words and conversations moments after they are spoken and drop everything you touch. This is invisible to others, and they can only see YOU, and not what’s happening inside. This is dedicated to a friend who experienced similar problems.

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CFS/ME in words – CFS/ME Awareness Week 2015

As part of CFS/ME Awareness week a group of us from the CFS Health Centres came together and thought of all the words we associated with having this condition that effects approximately 17 million people world wide, one of the members so eliquently created 5 pieces of word art to illustrate the different aspects of CFS from our point of views.

Symptoms

In previous posts I have talked about various symptoms of CFS/ME but this illustrates just how many there are, but also some of the consequences of these symptoms, like the loss of relationships with friends and family, jobs and even ones sense of self.

Along with feelings of hopelessness, the fear of how long you are going to feel like this and if it is ever going to get any better.

Stages of recovery 1 Continue reading