Stress, Mindset & Chronic Illness (Toby Morrison UK Seminar Pt 3)

Whilst Toby clearly stated that CFS/ME is not all in the mind, he emphasised the negative effect stress has on those with CFS/ME and a lot of chronic illnesses, and from personal experience I can defiantly vouch for stress causing my symptoms to flare up.

Stress is the #1 cause of chronic illness in the world.

We can be our own worst enemy. People with CFS/ME can often stop doing things because doing them causes anxiety and to be frank it is truly quite scary.

This can be from:

  • The anxiety that doing the thing in question is going to cause you some pretty serious payback
  • You wonder if you have forgotten how to do it
  • Run over various outcomes in your head about how it is going to go and,
  • How people are going to react to you.

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CFS/ME Triangle of Success (Toby Morrison UK Seminar Pt 2)

Toby Morrison has been one of the most important parts on my road to recovery from CFS/ME (which is by no means over!). He is a true inspiration to all suffers and really understands what we need to hear in order to help ourself, being a ex-sufferer himself.

At the end of last month I went to his UK seminar and it was really interesting, in part one of this post I went through Toby’s Introduction and symptoms of CFS/ME as well as potential causes (Link)

Triangle of success

We then moved on to to talking about what Toby calls the triangle of success, which I have illustrated below.
CFS Triangle of sucess Continue reading

Pain Scale

This is a really great post explaining pain scale, I have all to frequently got confused and like her have rated my pain too low on the scale, this gives clear defined explanations as well as some examples which makes it easier to rate pain effectively.

Invisible Pain Warriors

Everyone has likely been exposed to the pain scale at some point in their life. You know, the scale from one to ten, that you are supposed to use to explain your pain level to medical professionals.

For those who live with chronic pain, we quickly become VERY familiar with this scale. We see it in hospitals, in doctor’s offices, and those in pain management see and use it on a very regular basis.

The pain scale is important because it is how we explain the severity of our pain to doctors and nurses and hopefully, if used correctly, it helps to guide them in determining appropriate treatment options.

The problem with the pain scale is that there are many different versions and the scale in and of itself is very subjective. What one patient might rate as a 6, another might rate as a 3. That is because most…

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Intro to Toby Morisson Road to Recovery (UK Seminar Part 1)

Toby Morrison has been one of the most important parts on my road to recovery from CFS/ME (which is by no means over!). He is a true inspiration to all suffers and really understands what we need to hear in order to help ourself, being a ex-sufferer himself.

I stumbled Upon Toby by accident on youtube (Link) and it was the turning point in my ability to help myself, it put pacing and baseline in a way that I could understand and make work for me. His Facebook groups, free webinars and videos not only gave me really useful tips, but always put a smile on my face, Toby just radiates positivity which is truly infectious.
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My Team Me- No man (or woman) is an island

In my a previous post I talked about the inspirational speech that Martine Wright gave, she lost both her legs in the 7/7 bombings but was determined to bring good from the bad (Link), one thing that I wanted to delve into a bit more was her concept of ‘Team Me’ the group of people who help you in your recovery process.

The concept of Team Me really made me think, and I ended up mentally listing of all those who are so vital to my current recovery process, after all no man is an island after all (well woman in this case). I thought I would take the time to write out and share, as a small token of my gratitude. Continue reading

The inspirational Martine Wright – How good can come from bad

Martine+WrightLast Wednesday I attended a huge corporate event which completely wiped me out but was defiantly worth it! (Link) During the day we heard from ex world leaders, got entertained by A listers, and whilst all that was amazing what really struck a cord with me was the speech that Martine Wright gave, she is such a true inspiration.

Who is this Martine Wright you ask? Well to be honest I had no idea myself when she stepped on stage, but still her story really stuck a cord and brought both tear to my eye and a smile to my face.

Martine was a high flying marketing executive busy wrapped up in her own crazy busy life, until the day on July 7th 2005 when she got on a tube whilst running slightly late for work, sitting reading in the metro about how London and just being awarded the 2012 Olympics.

What she didn’t notice or realise at the time was that the man sitting opposite her with his rucksack (full of explosives!) had intentions to cause mass casualties and disruption to London’s rush hour traffic, and he succeeded. Continue reading

The Ugly Truth of Bad Day with CFS… But its ok!

Today has not been a good day in fact that is putting it quite mildly…But thats OK!

When I say I have had a bad day I don’t think people really get it, and before I was a sufferer of this ridiculous illness I wouldn’t have understood either.

Friends, family co workers and pretty much most people you come into contact with only see you at your best, where you grin and bare the pain or other symptoms.

I hate letting people know how bad it can get sometimes and the only one who really sees this is my partner, who really is my night in shining armour! This is for a variety of reasons from not wanting to seem weak, feeling embarrassed not wanting people to feel sorry for me or think of me as their sick friend. Continue reading

An interesting afternoon at the CFS/ME Research Collaborative conference (Part 1)

Earlier this month I was invited to attend the joint patient & researcher session at the UK CFS/ME Research Collaborative (CMRC) conference.

This conference sounded really interesting, I was invited to attend for free and it was literally on my door step so it was a bit of a no brainer. Continue reading

12 messages you might not know that I use to keep positive – Day 5 Invisible Illness Week

So today day 5 of the invisible illness awareness week I wanted follow on from my post yesterday; where I went through how having a positive mindset can have very real profound impacts on the body and physical health.

Yesterday I discussed various scientific studies and the science behind mindset on the body, but today I want to go down a different route and talk about how I personally keep on top of my mindset.

Wellness Wall Continue reading

The Impact of Mindset on Physical Health- Invisible Illness Awareness Week Day 4

Today marks the 4th Day of invisible awareness week and I thought it was finally time to finish I post I have been meaning to write for a long time.

CFS/ME is not a psychological illness! I am aware of this but for a long time I have had the avid belief that mindset can have an significant impact on recovery and the quality of suffers lives.

So I decided to have a little gander on the internet to see what I could find anything that could back up this belief of mine. I am not a sciencey person at all but  luckily there are loads of them out there in the world, so what to they have to say? Continue reading