Redefining what exercise/movement with ME/CFS (NHS TiP Course pt3)

In my previous post : Benefits of Movement for CFS/ME (link), I talked about some of the positive effects that can come out of using movement/exercise to help elevate some of the symptoms of CFS/ME as well as increasing daily functionality.

But equally several of the group had done GET (Graded exercise therapy) in the past with very negative results, whilst most had had some sort of negative experience of over doing it on the exercise front, leading to a sever crash.

So if on the one hand we are being told that exercise is good for us but on the other from both personal experience and from things we have researched and read up on we know it can have some pretty dire consequences, it seems like we are stuck in between a rock and a hard place. Continue reading

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Benefits of Movement for CFS/ME (NHS TiP Course- Pt2)

Exercise has a very bad reputation in relation to CFS/ME, and I did discuss it in a previous post (link) but it was something that was covered in the first session of the advanced NHS course.

The physio who lead this particular part of the session, spilt out movement into two separate elements:
Screen Shot 2014-12-08 at 16.00.46

Where function includes particular tasks, every day things really & exercise is movement with health at the focus. Continue reading

NHS From Theory to Practice Course for CFS/ME Part 1- Recap and Pro’s of Self Management

In previous posts I have talked about my positive experience with the NHS and having CFS/ME from my:

  • Speedy diagnosis from my GP and referral to Bristol specialist clinic (Link)
  • NHS Foundation course where we got information on: CBT, GET, Activity Management (Link), Rest, Relaxation (Link), Sleep and Stress Management (Link)
  • To my second 1-2-1 where I asked for further information on: Phased return to work (Link) and movement/fitness (Link)

It was in my second 1-2-1 that I was offered to attend the clinics advanced course names from Theory to Practice which was held over 5 sessions, and it is the first of these that I am going to discuss now. Continue reading

My NHS experience with CFS – Part 4 (NHS CFS Foundation Course 2- Sleep and Stress Management)

As part of the North Bristol Trusts program for CFS/ME they can send you on various courses, to begin I was sent on the foundation course, which consists of two 1 1/2 hour long sessions.

I wanted to document the whole process, as I really had no idea what to expect and I am aware that a lot of people do not have access to such services:

In the first session we talked about: Symptoms, CBT, GET, Activity Management (Link). The second session I have split into two posts, this being the second the first however was mainly on rest and relaxation (Link).

The main focus on this session however revolved around Sleep Management and then talked a little about Stress Management at the end.

Please click the link below if you wish to download the foundation course 2 hand out provided: Continue reading

My NHS experience with CFS – Part 3 (NHS CFS Foundation Course 2- Recap & Rest)

So I have to admit I wasn’t quite as enthusiastic and with it at the second part of the NHS CFS Foundation course, as I had way over done it earlier in the week, we have all been there at some point.

Like parts 1 & 2 of my NHS experience with CFS, guiding from my experience with my GP and assessment (Link) and the first foundation seminar (Link), this post I will talk through what I got out of the second and final foundation seminar, through both what leader taught us and from comments from other service users, as well as providing you with the handouts that I received on the day. Continue reading

My NHS experience with CFS – Part 2 (NHS CFS Foundation Course 1)

My NHS experience with CFS – Part 2 (NHS CFS Foundation Course 1)

As I mentioned in a previous posts (link)I was diagnosed with CFS and was seen by specialist clinic within about 9 months of symptoms first appearing. Which is really fast compared to other peoples experiences, I attribute this to an amazing GP.

So I really wanted to document my experience with the specialist NHS clinic, because before I got seen I had no idea what to expect, and I know so many people struggle to get any treatment for CFS.

I had heard very mixed reviews from different people, which I think might be due to what different people expect to get from the clinic – there is no miracle cure to CFS/ME so don’t expect that.

I went in with an open mind and was very glad. In this post I will talk through what I got out of the first foundation seminar, through both what leader taught us and from comments from other service users, as well as providing you with the handouts that I received on the day.
Continue reading