Stopping to smell the roses- Taking stock of living with a chronic illness

I have had this horrible condition (ME/CFS) for 2-3 years but looking back symptoms started way before.

At the beginning I started taking more and more days off work, before it getting so bad , I had to get signed off for around four months.

During this time I was predominately bed/house bound, unable to work, socialise and at the worst of it unable to get to the bathroom without the help of my parter. Continue reading

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Mindfulness practice: The Raisin (NHS Mindfulness course week one part 2)

In my previous post I gave an overview of my first session participating in the mindfulness course offered by the NHS Bristol CFS/ME clinic (link), this post will focus on one particular practice we did in this first session, one that I have aptly named: The Raisin!

Background

This is quite a common practice, it is classified as an informal as you can do it with any food or drink as part of your day, my understanding is that an informal practice is one that you don’t have to set aside to do an activity specially, it is more about doing things that you do everyday mindfully.

The Practice

We were each given a couple of raisins, we were told to really look, smell, listen, feel and taste them, simple right? Continue reading

The faces of hope- CFS/ME Awareness Week 2015

An estimated 250,000 people have CFS/ME in the UK, 1,000,000 in the USA and 17,000,000 worldwide.

But what do these 17 million people look like? Well a group of us who are on Toby Morrison’s online program thought it would be great to raise awareness to create a video & a collage of a load of our faces.

Faces of hope

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The Corrupted – A collection describing the different stages experienced with CFS (Part 2) – CFS/ME Awareness Week 2015

Averyl Ritchie is a wonderful artists I met in a CFS/ME group.

Her Corrupted Collection goes through the different stages of how she has experienced CFS/ME and it is a very beautiful depiction of what I think many of us have gone through.

Obscured Corruption

Obscured Corruption

This is how Averyl describes losing her cognitive skills – which is probably the worst part of CFS. Her brain is foggy, can’t think clearly or retain information. You forget words and conversations moments after they are spoken and drop everything you touch. This is invisible to others, and they can only see YOU, and not what’s happening inside. This is dedicated to a friend who experienced similar problems.

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Behind Perception (Part 3)- An exhibition challenging the perception of CFS/ME

In my previous posts I talked about Behind Perception an exhibition, with the emphasis on changing the perception of disability in particular that of the perception of ME/CFS.

It comprised of a mixture of visual and written pieces. Each piece gave a moving insight into how this horrible illness effected each of their lives, the first of which I shared in Behind Perception Part 1 (Link) and Part 2.

This final in the  series of posts I am going to share with you some of the photos I took at the exhibit.

Continue reading

Behind Perception (Part 2)- An exhibition challenging the perception of CFS/ME

Last week I went to an exhibition at Hamilton House in Bristol, with the emphasis on changing the perception of disability in particular that of the perception of ME/CFS.

It comprised of a mixture of visual and written pieces. Each piece gave a moving insight into how this horrible illness effected each of their lives, the first of which I shared in Behind Perception Part 1 (Link).

In this series of posts I am going to share with you some of the photos I took at the exhibit.

Continue reading

Behind Perception (Part 1)- An exhibition challenging the perception of CFS/ME

Behind Perception signEarlier this week I went to an exhibition at Hamilton House in Bristol, with the emphasis on changing the perception of disability in particular that of the perception of ME/CFS.

It comprised of a mixture of visual and written pieces. Each piece gave a moving insight into how this horrible illness effected each of their lives.

In this series of posts I am going to share with you some of the photos I took at the exhibit.

 

 

Continue reading