I have had this horrible condition (ME/CFS) for 2-3 years but looking back symptoms started way before.
At the beginning I started taking more and more days off work, before it getting so bad , I had to get signed off for around four months.
During this time I was predominately bed/house bound, unable to work, socialise and at the worst of it unable to get to the bathroom without the help of my parter. Continue reading
In my previous post I gave an overview of my first session participating in the mindfulness course offered by the NHS Bristol CFS/ME clinic (link), this post will focus on one particular practice we did in this first session, one that I have aptly named: The Raisin!
This is quite a common practice, it is classified as an informal as you can do it with any food or drink as part of your day, my understanding is that an informal practice is one that you don’t have to set aside to do an activity specially, it is more about doing things that you do everyday mindfully.
We were each given a couple of raisins, we were told to really look, smell, listen, feel and taste them, simple right? Continue reading
An estimated 250,000 people have CFS/ME in the UK, 1,000,000 in the USA and 17,000,000 worldwide.
But what do these 17 million people look like? Well a group of us who are on Toby Morrison’s online program thought it would be great to raise awareness to create a video & a collage of a load of our faces.
Averyl Ritchie is a wonderful artists I met in a CFS/ME group.
Her Corrupted Collection goes through the different stages of how she has experienced CFS/ME and it is a very beautiful depiction of what I think many of us have gone through.
This is how Averyl describes losing her cognitive skills – which is probably the worst part of CFS. Her brain is foggy, can’t think clearly or retain information. You forget words and conversations moments after they are spoken and drop everything you touch. This is invisible to others, and they can only see YOU, and not what’s happening inside. This is dedicated to a friend who experienced similar problems.
In my previous posts I talked about Behind Perception an exhibition, with the emphasis on changing the perception of disability in particular that of the perception of ME/CFS.
It comprised of a mixture of visual and written pieces. Each piece gave a moving insight into how this horrible illness effected each of their lives, the first of which I shared in Behind Perception Part 1 (Link) and Part 2.
This final in the series of posts I am going to share with you some of the photos I took at the exhibit.
Last week I went to an exhibition at Hamilton House in Bristol, with the emphasis on changing the perception of disability in particular that of the perception of ME/CFS.
It comprised of a mixture of visual and written pieces. Each piece gave a moving insight into how this horrible illness effected each of their lives, the first of which I shared in Behind Perception Part 1 (Link).
In this series of posts I am going to share with you some of the photos I took at the exhibit.
Earlier this week I went to an exhibition at Hamilton House in Bristol, with the emphasis on changing the perception of disability in particular that of the perception of ME/CFS.
It comprised of a mixture of visual and written pieces. Each piece gave a moving insight into how this horrible illness effected each of their lives.
In this series of posts I am going to share with you some of the photos I took at the exhibit.
Once I started to feel a bit better so was physically able to go out and socialise with friends easily (going for a coffee or round theirs for dinner etc), I started to take more notice of the slightly bigger social events, ranging from a friend’s birthday to a formal ball etc.
These events would defiantly rate a whooping 60-70 of my daily 100 credits, so would more than likely take me over my credit limit, and would also involve alcohol. (Talked about credit/pacing in previous post: Link)
Whilst these events would push me over, I still built them in to my weekly planners, as at least it enabled me predict when I was likely to crash, and I could really think ‘IS IT WORTH IT?’. As Toby says in several of his videos and I love this :
Think to yourself is this event a HELL YEAH? If yes go out do it live your life, if not learn to say that important word NO!
Gluten Free Adventures & M.E 