CFS/ME Triangle of Success (Toby Morrison UK Seminar Pt 2)

Toby Morrison has been one of the most important parts on my road to recovery from CFS/ME (which is by no means over!). He is a true inspiration to all suffers and really understands what we need to hear in order to help ourself, being a ex-sufferer himself.

At the end of last month I went to his UK seminar and it was really interesting, in part one of this post I went through Toby’s Introduction and symptoms of CFS/ME as well as potential causes (Link)

Triangle of success

We then moved on to to talking about what Toby calls the triangle of success, which I have illustrated below.
CFS Triangle of sucess Continue reading →

Intro to Toby Morisson Road to Recovery (UK Seminar Part 1)

Toby Morrison has been one of the most important parts on my road to recovery from CFS/ME (which is by no means over!). He is a true inspiration to all suffers and really understands what we need to hear in order to help ourself, being a ex-sufferer himself.

I stumbled Upon Toby by accident on youtube (Link) and it was the turning point in my ability to help myself, it put pacing and baseline in a way that I could understand and make work for me. His Facebook groups, free webinars and videos not only gave me really useful tips, but always put a smile on my face, Toby just radiates positivity which is truly infectious.
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12 messages you might not know that I use to keep positive – Day 5 Invisible Illness Week

So today day 5 of the invisible illness awareness week I wanted follow on from my post yesterday; where I went through how having a positive mindset can have very real profound impacts on the body and physical health.

Yesterday I discussed various scientific studies and the science behind mindset on the body, but today I want to go down a different route and talk about how I personally keep on top of my mindset.

Wellness Wall Continue reading →

Social activities: Hell Yeahs, Compromises & Concequences (Cinderella Syndrome)

Once I started to feel a bit better so was physically able to go out and socialise with friends easily (going for a coffee or round theirs for dinner etc), I started to take more notice of the slightly bigger social events, ranging from a friend’s birthday to a formal ball etc.

These events would defiantly rate a whooping 60-70 of my daily 100 credits, so would more than likely take me over my credit limit, and would also involve alcohol. (Talked about credit/pacing in previous post: Link)

Whilst these events would push me over, I still built them in to my weekly planners, as at least it enabled me predict when I was likely to crash, and I could really think ‘IS IT WORTH IT?’. As Toby says in several of his videos and I love this :

Think to yourself is this event a HELL YEAH? If yes go out do it live your life, if not learn to say that important word NO!

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ME/CFS Index

As my number of posts increases I thought it would be useful to create an index so it is easier to see older posts:

Personal Journey/Stories

Top Tips

My NHS experience with CFS

CFS/ME Research

What pacing is for me ?

Pacing is a word that when you have CFS/ME you become very accustomed too and a bit sick off if I can tell you the truth.

I was also a bit confused about what it actually entailed, knowing it was something I should be doing but not knowing what it actually involved.

But it turns out that what I have been doing using a modified version of Toby Morrison’s credit system, as I have outlined in a previous post (link), is exactly that all pacing involves is keeping a track of your actives and trying not to use all your energy all at once just because you feel good at the time. Yes I am doing something right 🙂 .

 

Best random find of my life- Intro to Toby Morrison Golden Rules for CFS

I am a big fan of you tube, especially when suffering from poor concentration watching a video review etc is so much easier than reading a long webpage.

At the time I was watching a video on ‘Tapping’ as someone had recommended it to me as a way of getting more energy / concentrating. ( It didn’t really get it to be honest, but everything is worth a shot’ after it finished in my recommended videos section was this video and it really changed my life:

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Acceptance then Action

Acceptance then Action

I really struggled to accept that I had CFS – I think its half because I wanted to be better straight away, which isn’t an option with CFS. But finally I started to accept my illness, and look for ways in which I could help myself, as I didn’t want to have wait until my appointment with the North Bristol CFS/ME Centre which was around 5 months away.

Don’t get me wrong I still have the occasional moment in which I think “Surely I don’t really have a debilitating illness, come on just snap out of it” but of course you can’t just snap out of it.

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