Redefining what exercise/movement with ME/CFS (NHS TiP Course pt3)

In my previous post : Benefits of Movement for CFS/ME (link), I talked about some of the positive effects that can come out of using movement/exercise to help elevate some of the symptoms of CFS/ME as well as increasing daily functionality.

But equally several of the group had done GET (Graded exercise therapy) in the past with very negative results, whilst most had had some sort of negative experience of over doing it on the exercise front, leading to a sever crash.

So if on the one hand we are being told that exercise is good for us but on the other from both personal experience and from things we have researched and read up on we know it can have some pretty dire consequences, it seems like we are stuck in between a rock and a hard place. Continue reading

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Benefits of Movement for CFS/ME (NHS TiP Course- Pt2)

Exercise has a very bad reputation in relation to CFS/ME, and I did discuss it in a previous post (link) but it was something that was covered in the first session of the advanced NHS course.

The physio who lead this particular part of the session, spilt out movement into two separate elements:
Screen Shot 2014-12-08 at 16.00.46

Where function includes particular tasks, every day things really & exercise is movement with health at the focus. Continue reading

NHS From Theory to Practice Course for CFS/ME Part 1- Recap and Pro’s of Self Management

In previous posts I have talked about my positive experience with the NHS and having CFS/ME from my:

  • Speedy diagnosis from my GP and referral to Bristol specialist clinic (Link)
  • NHS Foundation course where we got information on: CBT, GET, Activity Management (Link), Rest, Relaxation (Link), Sleep and Stress Management (Link)
  • To my second 1-2-1 where I asked for further information on: Phased return to work (Link) and movement/fitness (Link)

It was in my second 1-2-1 that I was offered to attend the clinics advanced course names from Theory to Practice which was held over 5 sessions, and it is the first of these that I am going to discuss now. Continue reading

Stress, Mindset & Chronic Illness (Toby Morrison UK Seminar Pt 3)

Whilst Toby clearly stated that CFS/ME is not all in the mind, he emphasised the negative effect stress has on those with CFS/ME and a lot of chronic illnesses, and from personal experience I can defiantly vouch for stress causing my symptoms to flare up.

Stress is the #1 cause of chronic illness in the world.

We can be our own worst enemy. People with CFS/ME can often stop doing things because doing them causes anxiety and to be frank it is truly quite scary.

This can be from:

  • The anxiety that doing the thing in question is going to cause you some pretty serious payback
  • You wonder if you have forgotten how to do it
  • Run over various outcomes in your head about how it is going to go and,
  • How people are going to react to you.

Continue reading

CFS/ME Triangle of Success (Toby Morrison UK Seminar Pt 2)

Toby Morrison has been one of the most important parts on my road to recovery from CFS/ME (which is by no means over!). He is a true inspiration to all suffers and really understands what we need to hear in order to help ourself, being a ex-sufferer himself.

At the end of last month I went to his UK seminar and it was really interesting, in part one of this post I went through Toby’s Introduction and symptoms of CFS/ME as well as potential causes (Link)

Triangle of success

We then moved on to to talking about what Toby calls the triangle of success, which I have illustrated below.
CFS Triangle of sucess Continue reading

Pain Scale

This is a really great post explaining pain scale, I have all to frequently got confused and like her have rated my pain too low on the scale, this gives clear defined explanations as well as some examples which makes it easier to rate pain effectively.

Invisible Pain Warriors

Everyone has likely been exposed to the pain scale at some point in their life. You know, the scale from one to ten, that you are supposed to use to explain your pain level to medical professionals.

For those who live with chronic pain, we quickly become VERY familiar with this scale. We see it in hospitals, in doctor’s offices, and those in pain management see and use it on a very regular basis.

The pain scale is important because it is how we explain the severity of our pain to doctors and nurses and hopefully, if used correctly, it helps to guide them in determining appropriate treatment options.

The problem with the pain scale is that there are many different versions and the scale in and of itself is very subjective. What one patient might rate as a 6, another might rate as a 3. That is because most…

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