CFS/ME Triangle of Success (Toby Morrison UK Seminar Pt 2)

Toby Morrison has been one of the most important parts on my road to recovery from CFS/ME (which is by no means over!). He is a true inspiration to all suffers and really understands what we need to hear in order to help ourself, being a ex-sufferer himself.

At the end of last month I went to his UK seminar and it was really interesting, in part one of this post I went through Toby’s Introduction and symptoms of CFS/ME as well as potential causes (Link)

Triangle of success

We then moved on to to talking about what Toby calls the triangle of success, which I have illustrated below.
CFS Triangle of sucess Continue reading

Pain Scale

This is a really great post explaining pain scale, I have all to frequently got confused and like her have rated my pain too low on the scale, this gives clear defined explanations as well as some examples which makes it easier to rate pain effectively.

Invisible Pain Warriors

Everyone has likely been exposed to the pain scale at some point in their life. You know, the scale from one to ten, that you are supposed to use to explain your pain level to medical professionals.

For those who live with chronic pain, we quickly become VERY familiar with this scale. We see it in hospitals, in doctor’s offices, and those in pain management see and use it on a very regular basis.

The pain scale is important because it is how we explain the severity of our pain to doctors and nurses and hopefully, if used correctly, it helps to guide them in determining appropriate treatment options.

The problem with the pain scale is that there are many different versions and the scale in and of itself is very subjective. What one patient might rate as a 6, another might rate as a 3. That is because most…

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Intro to Toby Morisson Road to Recovery (UK Seminar Part 1)

Toby Morrison has been one of the most important parts on my road to recovery from CFS/ME (which is by no means over!). He is a true inspiration to all suffers and really understands what we need to hear in order to help ourself, being a ex-sufferer himself.

I stumbled Upon Toby by accident on youtube (Link) and it was the turning point in my ability to help myself, it put pacing and baseline in a way that I could understand and make work for me. His Facebook groups, free webinars and videos not only gave me really useful tips, but always put a smile on my face, Toby just radiates positivity which is truly infectious.
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The Ugly Truth of Bad Day with CFS… But its ok!

Today has not been a good day in fact that is putting it quite mildly…But thats OK!

When I say I have had a bad day I don’t think people really get it, and before I was a sufferer of this ridiculous illness I wouldn’t have understood either.

Friends, family co workers and pretty much most people you come into contact with only see you at your best, where you grin and bare the pain or other symptoms.

I hate letting people know how bad it can get sometimes and the only one who really sees this is my partner, who really is my night in shining armour! This is for a variety of reasons from not wanting to seem weak, feeling embarrassed not wanting people to feel sorry for me or think of me as their sick friend. Continue reading

12 messages you might not know that I use to keep positive – Day 5 Invisible Illness Week

So today day 5 of the invisible illness awareness week I wanted follow on from my post yesterday; where I went through how having a positive mindset can have very real profound impacts on the body and physical health.

Yesterday I discussed various scientific studies and the science behind mindset on the body, but today I want to go down a different route and talk about how I personally keep on top of my mindset.

Wellness Wall Continue reading

The Impact of Mindset on Physical Health- Invisible Illness Awareness Week Day 4

Today marks the 4th Day of invisible awareness week and I thought it was finally time to finish I post I have been meaning to write for a long time.

CFS/ME is not a psychological illness! I am aware of this but for a long time I have had the avid belief that mindset can have an significant impact on recovery and the quality of suffers lives.

So I decided to have a little gander on the internet to see what I could find anything that could back up this belief of mine. I am not a sciencey person at all but  luckily there are loads of them out there in the world, so what to they have to say? Continue reading

30 Things About My Invisible Illness You May Not Know – Invisible Illness Awarness Week (Day1)

Today marks the beginning of invisible illness awareness week (8-14th September) and to raise awareness I am going to post a blog a day whether that be in my new personal updates section or even a recipe.

To start the week off I am going to participate by sharing with you the “30 Things About My Invisible Illness You May Not Know” if you would like to participate or find more about invisible awareness week click here.

30 Things About My Invisible Illness You May Not Know Continue reading

Social activities: Hell Yeahs, Compromises & Concequences (Cinderella Syndrome)

Once I started to feel a bit better so was physically able to go out and socialise with friends easily (going for a coffee or round theirs for dinner etc), I started to take more notice of the slightly bigger social events, ranging from a friend’s birthday to a formal ball etc.

These events would defiantly rate a whooping 60-70 of my daily 100 credits, so would more than likely take me over my credit limit, and would also involve alcohol. (Talked about credit/pacing in previous post: Link)

Whilst these events would push me over, I still built them in to my weekly planners, as at least it enabled me predict when I was likely to crash, and I could really think ‘IS IT WORTH IT?’. As Toby says in several of his videos and I love this :

Think to yourself is this event a HELL YEAH? If yes go out do it live your life, if not learn to say that important word NO!

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My NHS experience with CFS – Part 4 (NHS CFS Foundation Course 2- Sleep and Stress Management)

As part of the North Bristol Trusts program for CFS/ME they can send you on various courses, to begin I was sent on the foundation course, which consists of two 1 1/2 hour long sessions.

I wanted to document the whole process, as I really had no idea what to expect and I am aware that a lot of people do not have access to such services:

In the first session we talked about: Symptoms, CBT, GET, Activity Management (Link). The second session I have split into two posts, this being the second the first however was mainly on rest and relaxation (Link).

The main focus on this session however revolved around Sleep Management and then talked a little about Stress Management at the end.

Please click the link below if you wish to download the foundation course 2 hand out provided: Continue reading

ME/CFS Index

As my number of posts increases I thought it would be useful to create an index so it is easier to see older posts:

Personal Journey/Stories

Top Tips

My NHS experience with CFS

CFS/ME Research