Author Archives: Hannah Jade

My NHS experience with CFS – Part 6 (1-2-1 Fitness)

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After I had attended the foundation seminars held at Southmead which covered a variety of issues including: Activity Management, CBT & GET (Link), Rest & Relaxation (Link), Sleep and Stress Management (Link); I then attended a follow up with my CFS specialist, this was very much a session lead by me where I could ask for help and guidance with the issues I was really struggling with.

Before this session I had a good think about what it was I needed the most help with from her. The two areas I found I wanted her advise on the most were: Returning to work/ Phased return (Link) and the best way to increase my physical fitness/ exercise. Continue reading →

Variety is the spice of life- GF Lunch at Friska

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Today a friend asked me if I wanted to meet up for a catch up at lunch. I jumped on the offer to have something other than my standard jacket potato and tuna from my works canteen, pretty much the only GF option.

As I don’t have a full hour break due to being on a phased return to work, I needed something quick and most importantly had a non potato GF option. So Friska on Victoria Street it was. I had been there many times before I was GF and all their food is super tasty and I thought, it is just the sort of place that would have GF options (And I was right!). Continue reading →

GF Tips & Reviews Index

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Product Reviews

Crackers Bread GF Goodies
 Quick Meals Other 
Narin’s GF Oat Cakes (Herb & Seed) Sainsbury’s freefrom Soft White Rolls Mrs Crimbles Choco Chip Muffin Tesco Free From Wheat & Gluten pizza (Cheese& Tomato) Pulsin Pea Protein (GF)
Mrs Crimbles Cheese Crackers (Tomato & Pesto) Mrs Crimbles Double Chocolate brownie Mc Cain Rustic Oven Chips (3%Fat)  Slim Fruits
Waitrose GF Millionaire Blondies
M&S Free From Chocolate Loaf
Sainsburys Free From Digestive Biscuits

Eating Out Reviews

GF Tips

GF Recipe Index

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Main Meal

Baking

Snacks & Breakfast ideas

My NHS experience with CFS – Part 5 (1-2-1 Phased Return to Work)

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During my first appointment at the North Bristol ME/CFS clinic (based at Southmead Hospital) my OT explained that the way the clinic works was that once my diagnosis was confirmed which occurred during that appointment (Link), I would be invited to attend their CFS/ME Foundation Course. Following the completion of the course I would then have a second one to one with her.

The foundation course consisted of two 1.5 hour long seminars which covered very basically an array of management strategies:

  • Seminar One covered: Activity management, CBT, GET (Link)
  • Seminar Two- Pt 1- Rest and Relaxation (Link)
  • Seminar Two- Pt-2- Sleep and Stress Management (Link)

Once I had attended these seminars and digested their content, I would then attend a follow up with her, which would be lead by me, I could get specific support on what I felt I needed the most. Continue reading →

Social activities: Hell Yeahs, Compromises & Concequences (Cinderella Syndrome)

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Once I started to feel a bit better so was physically able to go out and socialise with friends easily (going for a coffee or round theirs for dinner etc), I started to take more notice of the slightly bigger social events, ranging from a friend’s birthday to a formal ball etc.

These events would defiantly rate a whooping 60-70 of my daily 100 credits, so would more than likely take me over my credit limit, and would also involve alcohol. (Talked about credit/pacing in previous post: Link)

Whilst these events would push me over, I still built them in to my weekly planners, as at least it enabled me predict when I was likely to crash, and I could really think ‘IS IT WORTH IT?’. As Toby says in several of his videos and I love this :

Think to yourself is this event a HELL YEAH? If yes go out do it live your life, if not learn to say that important word NO!

Continue reading →

Speedy Gluten Free Falafels & Chickpea Flat breads

Posted in Main Meals by

Falafel 1I love falafels, they are just soooo tasty!!!! So many recipes are quite complicated and take a while due to having to soak chickpeas for agesss. When I discovered this recipe I was very sceptical to how nice they would be considering from start to finish they only take about 10 mins.

 

I decided that the falafels by themselves simply wasn’t enough chickpeas, I may or may not be obsessed! So I decided to make these gorgeous Chickpea Flat breads/ Pancakes they are somewhere in between a pancake and a flat bread. Continue reading →

My NHS experience with CFS – Part 4 (NHS CFS Foundation Course 2- Sleep and Stress Management)

Posted in My NHS Journey by

As part of the North Bristol Trusts program for CFS/ME they can send you on various courses, to begin I was sent on the foundation course, which consists of two 1 1/2 hour long sessions.

I wanted to document the whole process, as I really had no idea what to expect and I am aware that a lot of people do not have access to such services:

In the first session we talked about: Symptoms, CBT, GET, Activity Management (Link). The second session I have split into two posts, this being the second the first however was mainly on rest and relaxation (Link).

The main focus on this session however revolved around Sleep Management and then talked a little about Stress Management at the end.

Please click the link below if you wish to download the foundation course 2 hand out provided: Continue reading →

ME/CFS Index

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As my number of posts increases I thought it would be useful to create an index so it is easier to see older posts:

Personal Journey/Stories

Top Tips

My NHS experience with CFS

CFS/ME Research